{"id":2257,"date":"2018-03-05T15:41:08","date_gmt":"2018-03-05T14:41:08","guid":{"rendered":"http:\/\/dev.fondationpierrefabre.org\/action-albinisme-survivre-au-soleil\/"},"modified":"2019-02-18T00:58:00","modified_gmt":"2019-02-17T23:58:00","slug":"albinism-surviving-sun","status":"publish","type":"post","link":"https:\/\/dev.fondationpierrefabre.org\/en\/current-initiatives\/albinism-surviving-sun\/","title":{"rendered":"Albinism &#8211; Surviving the Sun"},"content":{"rendered":"<p><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-margin-bottom:30px;--awb-background-color:#f2f2f2;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last\" style=\"--awb-bg-size:cover;\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-text fusion-text-1\"><h1 style=\"text-align: center;\">Albinism &#8211; Surviving the Sun<\/h1>\n<\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><\/div><\/div><div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-2 nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-1 fusion_builder_column_1_1 1_1 fusion-one-full fusion-column-first fusion-column-last\" style=\"--awb-bg-size:cover;\"><div class=\"fusion-column-wrapper fusion-flex-column-wrapper-legacy\"><div class=\"fusion-text fusion-text-2\"><p><strong>03\/05\/2018<\/strong><\/p>\n<p><strong>Albinism sufferers are one of the most marginalised and vulnerable groups of sub-Saharan Africa, because they are particularly exposed to the risk of skin cancer. Fondation Pierre Fabre is working alongside NGO Standing Voice on the development of special care programmes, first in Tanzania and then in Malawi.<\/strong><\/p>\n<p><img decoding=\"async\" class=\"wp-image-725 size-full alignright\" src=\"https:\/\/dev.fondationpierrefabre.org\/wp-content\/uploads\/2018\/07\/image_fpf_947x300.jpg\" alt=\"\" width=\"320\" height=\"180\" srcset=\"https:\/\/dev.fondationpierrefabre.org\/wp-content\/uploads\/2018\/07\/image_fpf_947x300-200x113.jpg 200w, https:\/\/dev.fondationpierrefabre.org\/wp-content\/uploads\/2018\/07\/image_fpf_947x300-300x169.jpg 300w, https:\/\/dev.fondationpierrefabre.org\/wp-content\/uploads\/2018\/07\/image_fpf_947x300.jpg 320w\" sizes=\"(max-width: 320px) 100vw, 320px\" \/><\/p>\n<p>The prevalence of albinism is between 4 and 5 times greater in sub-Saharan Africa than the world average. In certain regions of Tanzania and Malawi, albinism affects up to 1 person in every 1,500. Those with the condition have an exceptionally high risk of developing skin cancers and other skin conditions. Studies estimate that the majority die of skin cancer between the ages of 30 and 40*.<\/p>\n<p>This report brings you details of the cancer awareness, prevention and care initiatives rolled out in Tanzania by the NGO\u00a0<a href=\"http:\/\/www.standingvoice.org\/\">Standing Voice<\/a>\u00a0<a href=\"https:\/\/www.fondationpierrefabre.org\/en\/discover-our-programmes\/tropical-dermatology\/prevention-management-skin-cancers-albinism\">(learn more<\/a>).<\/p>\n<p><em><span style=\"font-size: 8pt;\">*Report by independent expert Ikponwosa Ero to the United Nations, 2015<\/span><\/em><\/p>\n<\/div><div class=\"fusion-video fusion-youtube\" style=\"--awb-max-width:800px;--awb-max-height:450px;\"><div class=\"video-shortcode\"><div class=\"fluid-width-video-wrapper\" style=\"padding-top:56.25%;\" ><iframe title=\"YouTube video player 1\" src=\"https:\/\/www.youtube.com\/embed\/-1ol6LyMFYM?wmode=transparent&autoplay=0\" width=\"800\" height=\"450\" allowfullscreen allow=\"autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture;\"><\/iframe><\/div><\/div><\/div><div class=\"fusion-sep-clear\"><\/div><div class=\"fusion-separator fusion-full-width-sep\" style=\"margin-left: auto;margin-right: auto;margin-top:8px;margin-bottom:7px;width:100%;\"><\/div><div class=\"fusion-sep-clear\"><\/div><div class=\"fusion-clearfix\"><\/div><\/div><\/div><\/div><\/div><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":726,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[95,77,66],"tags":[],"class_list":["post-2257","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-current-initiatives","category-multicountries","category-tropical-dermatology"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.2 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Albinism - Surviving the Sun - Dev FPF<\/title>\n<meta name=\"description\" content=\"&quot;Studies estimate that the majority of albinism sufferers dies of skin cancer between the ages of 30 and 40.Discover their daily life in this report.&quot;\" \/>\n<meta name=\"robots\" content=\"noindex, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Albinism - Surviving the Sun - Dev FPF\" \/>\n<meta property=\"og:description\" content=\"&quot;Studies estimate that the majority of albinism sufferers dies of skin cancer between the ages of 30 and 40.Discover their daily life in this report.&quot;\" \/>\n<meta property=\"og:url\" content=\"https:\/\/dev.fondationpierrefabre.org\/en\/current-initiatives\/albinism-surviving-sun\/\" \/>\n<meta property=\"og:site_name\" content=\"Dev FPF\" \/>\n<meta property=\"article:publisher\" content=\"https:\/\/www.facebook.com\/FondationPierreFabre\/\" \/>\n<meta property=\"article:published_time\" content=\"2018-03-05T14:41:08+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2019-02-17T23:58:00+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/dev.fondationpierrefabre.org\/wp-content\/uploads\/2018\/07\/image_fpf_947x300.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"320\" \/>\n\t<meta property=\"og:image:height\" content=\"180\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"pbouchayer\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@FondationPFabre\" \/>\n<meta name=\"twitter:site\" content=\"@FondationPFabre\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"pbouchayer\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/dev.fondationpierrefabre.org\/en\/current-initiatives\/albinism-surviving-sun\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/dev.fondationpierrefabre.org\/en\/current-initiatives\/albinism-surviving-sun\/\"},\"author\":{\"name\":\"pbouchayer\",\"@id\":\"https:\/\/dev.fondationpierrefabre.org\/fr\/#\/schema\/person\/df1e5cd1b57fe93bcbe0f2966c947d31\"},\"headline\":\"Albinism &#8211; 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