![\"\"](\"https:\/\/dev.fondationpierrefabre.org\/wp-content\/uploads\/2018\/09\/drepanocytose-senegal-saint-louis-fondation-fabre.jpg\")
<\/a><\/li><\/div>Operational study on early detection and treatment of sickle cell disease<\/a><\/h4>
In 2013, the University Gaston Berger began an operational study of neonatal screening and early treatment of sickle cell disease. The Foundation has joined forces with this effort.<\/p>30\/07\/2018<\/em><\/span><\/div><\/article><\/section><\/div>
<\/div><\/div><\/div>See also<\/span><\/h4>\n<\/div>
![\"\"](\"https:\/\/dev.fondationpierrefabre.org\/wp-content\/uploads\/2018\/09\/drepa_multipays_v2.jpg\")
<\/a><\/li><\/div>Improving healthcare and social services for those with sickle cell disease<\/a><\/h4>
In 2014, Cameroon, Madagascar and the two Congo joined forces in a vast transnational program to effectively fight against sickle cell disease. The Foundation supports the project overseen by the IECD and financed by the AFD.<\/p>30\/07\/2018<\/em><\/span><\/div><\/article><\/section><\/div>
<\/div><\/div><\/div>Follow our actions<\/span><\/h4>\n<\/div>
![\"\"](\"https:\/\/dev.fondationpierrefabre.org\/wp-content\/uploads\/2018\/09\/visite_terrain_future_faculte_de_pharmacie_de_madagascar-1.jpg\")
<\/a><\/li><\/ul><\/div>pbouchayer<\/a><\/span><\/span>2019-02-18T00:45:14+01:00<\/span>Madagascar: a mission on the frontlines to fight sickle cell disease and train pharmacists<\/a><\/h4>
Madagascar: a mission on the frontlines to fight sickle cell disease and train pharmacists 09\/11\/2018 During a mission in Madagascar, a delegation from the Fondation Pierre Fabre took part in<\/p><\/div><\/article><\/section><\/div>
Feasibility study for a sickle cell disease treatment programme<\/h1>\n\u2014 Haiti \u2014<\/span><\/em><\/h3>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div>BACKGROUND<\/h1>\n
Sickle cell disease is less common in the Caribbean than in Africa. It is also more effectively managed there, particularly in the French overseas territories. Nevertheless, some inequalities remain, as some islands, such as Dominica and Haiti, face greater disadvantages than others. To compensate for this imbalance, Caribbean clinicians and researchers joined forces to create the Carest network in 2011.<\/p>\n
Fondation Pierre Fabre wished to support this effort, especially in Haiti: the prevalence of sickle cell syndrome on the island was reported to be 0.7% of births, but there was no dedicated policy, no prophylaxis use, and no appropriate vaccination. The priority there was fighting AIDS, tuberculosis and malnutrition.<\/p>\n
In cooperation with Carest,\u00a0the Foundation unveiled its initial operation in 2014, studying the feasibility of a treatment and management programme for sickle cell disease in Haiti<\/strong>.This initially entailed remedying the island\u2019s dearth of epidemiological data through a neonatal screening pilot project implemented in three local hospitals. For this plan, the Foundation financed health personnel training in sampling techniques (with analyses performed in Guadeloupe). The operation also included improving patient care by training paediatric nurses and clinicians, as well as drafting a standard protocol. Lastly, a number of tools were developed to inform patients, their families and the general public about the disease.<\/p>\nAfter an exploratory mission by Fondation Pierre Fabre, operations began the second half of 2014. The long-term objective is\u00a0to sensitise governments to the benefits of a national programme combatting sickle cell disease, and having a viable and adaptable disease management model<\/strong>.<\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div>KEY FACTS<\/span>
\n<\/strong>_____<\/span><\/p>\nPriority<\/strong><\/span>
\nCombating Sickle cell disease<\/span><\/p>\nProgramme<\/strong><\/span>
\nSince 2014<\/span><\/p>\nType of involvement<\/strong><\/span>
\nDistributor<\/span><\/p>\nActions<\/strong><\/span><\/p>\n\n- Funding for tools and information sessions<\/span><\/li>\n
- Funding for trainings<\/span><\/li>\n
- Treatment protocol assessment<\/span><\/li>\n<\/ul>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div>
ACHIEVEMENTS AND FUTURE INITIATIVES<\/h2>\n<\/div><\/div><\/div><\/div>Achievements<\/span><\/h4>\n<\/div><\/div><\/div><\/div>3<\/span>
\n<\/span>partner health facilities
\n<\/strong><\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div>1<\/span>
\n<\/span>dedicated space created to raise parental awareness, run by the AAFH (Haiti Sickle Cell Anaemia Association)
\n<\/strong><\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div>3<\/span>
\n<\/span>nurse trained in the Sickle Cell DU advanced degree at the Antilles-Guyana University
\n<\/strong><\/p>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div>Future initiatives<\/span><\/h3>\n<\/div>In 2015, Fondation Pierre Fabre has continued to support capacity building in healthcare staff at partner structures, as well as raising awareness about the need for neonatal screening.<\/p>\n<\/div>
<\/div><\/div><\/div><\/div><\/div>PARTNERS<\/h2>\n<\/div><\/div><\/div><\/div><\/div><\/div><\/div>\n- R\u00e9seau CAREST \u2013 Caribbean Network of Researchers on Sickle Cell Disease and Thalassemia<\/a>\u00a0(op\u00e9rateur du projet)<\/li>\n
- Association d\u2019an\u00e9mie falciforme d\u2019Ha\u00efti\u00a0 – AAFH<\/a>\u00a0(information des patients et du grand public)<\/li>\n
- H\u00f4pital p\u00e9diatrique Saint-Damien (d\u00e9pistage, soins)<\/li>\n<\/ul>\n<\/div><\/div><\/div><\/div>
\n- H\u00f4pital universitaire de la Paix \u2013 HUP (d\u00e9pistage, soins)<\/li>\n
- H\u00f4pital Universit\u00e9 d\u2019Etat d\u2019Ha\u00efti \u2013 HUEH (d\u00e9pistage, soins)<\/li>\n
- Institut Necker P\u00e9diatrie en Ha\u00efti Association – INPHA<\/a>\u00a0(expertise)<\/li>\n<\/ul>\n<\/div><\/div><\/div><\/div><\/div><\/div>
See also<\/span><\/h4>\n<\/div>- <\/a><\/li><\/div>
Operational study on early detection and treatment of sickle cell disease<\/a><\/h4>In 2013, the University Gaston Berger began an operational study of neonatal screening and early treatment of sickle cell disease. The Foundation has joined forces with this effort.<\/p>30\/07\/2018<\/em><\/span><\/div><\/article><\/section><\/div><\/div><\/div><\/div>See also<\/span><\/h4>\n<\/div>
BACKGROUND<\/h1>\n
Sickle cell disease is less common in the Caribbean than in Africa. It is also more effectively managed there, particularly in the French overseas territories. Nevertheless, some inequalities remain, as some islands, such as Dominica and Haiti, face greater disadvantages than others. To compensate for this imbalance, Caribbean clinicians and researchers joined forces to create the Carest network in 2011.<\/p>\n
Fondation Pierre Fabre wished to support this effort, especially in Haiti: the prevalence of sickle cell syndrome on the island was reported to be 0.7% of births, but there was no dedicated policy, no prophylaxis use, and no appropriate vaccination. The priority there was fighting AIDS, tuberculosis and malnutrition.<\/p>\n
In cooperation with Carest,\u00a0the Foundation unveiled its initial operation in 2014, studying the feasibility of a treatment and management programme for sickle cell disease in Haiti<\/strong>.This initially entailed remedying the island\u2019s dearth of epidemiological data through a neonatal screening pilot project implemented in three local hospitals. For this plan, the Foundation financed health personnel training in sampling techniques (with analyses performed in Guadeloupe). The operation also included improving patient care by training paediatric nurses and clinicians, as well as drafting a standard protocol. Lastly, a number of tools were developed to inform patients, their families and the general public about the disease.<\/p>\n After an exploratory mission by Fondation Pierre Fabre, operations began the second half of 2014. The long-term objective is\u00a0to sensitise governments to the benefits of a national programme combatting sickle cell disease, and having a viable and adaptable disease management model<\/strong>.<\/p>\n<\/div> KEY FACTS<\/span> Priority<\/strong><\/span> Programme<\/strong><\/span> Type of involvement<\/strong><\/span> Actions<\/strong><\/span><\/p>\n 3<\/span> 1<\/span> 3<\/span> In 2015, Fondation Pierre Fabre has continued to support capacity building in healthcare staff at partner structures, as well as raising awareness about the need for neonatal screening.<\/p>\n<\/div> In 2013, the University Gaston Berger began an operational study of neonatal screening and early treatment of sickle cell disease. The Foundation has joined forces with this effort.<\/p>30\/07\/2018<\/em><\/span><\/div><\/article><\/section><\/div>
\n<\/strong>_____<\/span><\/p>\n
\nCombating Sickle cell disease<\/span><\/p>\n
\nSince 2014<\/span><\/p>\n
\nDistributor<\/span><\/p>\n\n
ACHIEVEMENTS AND FUTURE INITIATIVES<\/h2>\n<\/div>
Achievements<\/span><\/h4>\n<\/div>
\n<\/span>partner health facilities
\n<\/strong><\/p>\n<\/div>
\n<\/span>dedicated space created to raise parental awareness, run by the AAFH (Haiti Sickle Cell Anaemia Association)
\n<\/strong><\/p>\n<\/div>
\n<\/span>nurse trained in the Sickle Cell DU advanced degree at the Antilles-Guyana University
\n<\/strong><\/p>\n<\/div>Future initiatives<\/span><\/h3>\n<\/div>
PARTNERS<\/h2>\n<\/div>
\n
\n
See also<\/span><\/h4>\n<\/div>
<\/a><\/li><\/div>Operational study on early detection and treatment of sickle cell disease<\/a><\/h4>
See also<\/span><\/h4>\n<\/div>